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EUropean Scleroderma Trials And Research group

EUSTAR actively encourages and supports the development and conducting of clinical and basic science research in systemic sclerosis

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Database Maintenance Notice

Planned maintenance to the EUSTAR database is scheduled to take place from Friday 31st May to Tuesday 4th June 2024.

The maintenance will update the Electronic Case Report Form (eCRF), implement new features to improve your user experience, and perform a new import of data from the previous EUSTAR database. During this maintenance period, users will have ‘Read Only’ access to the database, this means you will still be able to access data, but you will not be able to add or modify data.

We understand that this may cause inconvenience, but these enhancements are essential to ensure the stability and performance of our platform. We sincerely appreciate your understanding and cooperation during this maintenance period.

We are committed to minimizing disruptions and working swiftly to have the platform back in operation as soon as possible. 

Who we are

The European Scleroderma Trials and Research group (EUSTAR) aims to foster the awareness, understanding and research on systemic sclerosis and its management throughout Europe and the rest of the world.

EUSTAR is an international scleroderma research network acting under the umbrella of the World Scleroderma Foundation. The aim is to coordinate and focus research activities, in order to improve treatment, quality of life and prognosis of patients with scleroderma. The EUSTAR group was launched in 2004 and was initially supported by the European League Against Rheumatism (EULAR). The main research tool is a multicenter online database that allows following prospectively more than 15,000 patients with scleroderma in more than 200 International centres. Each patient’s annually scheduled visit for medical purposes is recorded providing longitudinal observational data. Any contributing team can submit a research project and get access to the whole database for the specific approved project.

CENTERS

Affiliation to EUSTAR is open to all centers devoted to the care and study of SSc. Requirement for center affiliation is the capacity to care for SSc patients according to the EUSTAR regulations.

PROJECTS

EUSTAR actively encourages and supports the development and conducting of clinical and basic science research. At-a-glance information on all current trials and projects hosted by EUSTAR.

EDUCATION

The EUSTAR educational course on systemic sclerosis in place and online course. The EULAR On-line consists of 10 modules which deal with physiopathology, clinical aspects and management of this complex disease.