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EUSTAR Database


The main research tool of EUSTAR is our bespoke multi-centre database, that currently contains 23,000+ patients with SSc from across the world. Annually scheduled medical visits are recorded, providing demographic information and longitudinal disease specific and treatment data, including:

  • Disease subsets
  • Autoantibodies
  • Disease signs and symptoms
  • Disease duration
  • Organ involvement
  • Laboratory results
  • Test results
  • Patient reported outcome measures

EUSTAR continually develops the database to improve functionality and provides specialised support to centres in their use of the database.

Database Provider

Our database is hosted on the Medidata Rave EDC (Electronic Data Capture) platform.

Database - Members Area

EUSTAR members can access our ‘Database – Members Area’ page, that provides database users with support documents, including:

  • Database User Guide
  • A PDF copy of the database (eCRF)
  • Tutorials