The President leads EUSTAR by chairing meetings, presenting an annual report at the EULAR Congress, and reporting annually to the World Scleroderma Foundation (WSF). They ensure accurate data entry in the EUSTAR database and oversee its utilization. As the primary liaison with external parties, the President represents EUSTAR in official capacities. In their absence, the Vice-President assumes these responsibilities.

The Vice-President supports the President in all duties, and steps in when necessary, co-chairs meetings and maintains communication with Principal Investigators at EUSTAR Centers. They assist in supervising the database and presenting the annual report to the Counsellors and the EUSTAR Consortium at the EULAR Congress. Should the President be unable to serve their full term, the Vice-President succeeds to the office.

The Treasurer oversees EUSTAR’s financial matters, including managing all assets, funds, and property. They maintain accurate financial records, which are audited annually by two auditors. The auditors’ report is presented at the EULAR Congress Annual General Meeting. If the Treasurer cannot complete their term, the Board of Counsellors appoints a successor until the next meeting.

Counsellors provide guidance and support to the Executive Office in managing EUSTAR. They also record the minutes of board meetings, ensuring accurate documentation of all proceedings.

Affiliated EUSTAR Centers gain membership in the EUSTAR Consortium upon registration, confirmation by the Vice-President, and the entry of at least one patient case in the EUSTAR database. Each center is responsible for expanding the EUSTAR network in their country and raising awareness about scleroderma across political, social, and scientific platforms. The Consortium, composed of all EUSTAR Centers, convenes at the Annual General Meeting during the EULAR Congress. Each center holds one vote on any issues put forward to the Consortium.

Board members are elected by the EUSTAR Consortium for a term of 3 years, following which, elected members have the option to apply for another 3-year term in another position. All executive decisions should be unanimous among the Executive Office members and approved by the Counsellors.

2022-2025:

• Chairman: Francesco Del Galdo
• Vice-President:Marie-Elise Truchetet
• Treasurer: Madelon Vonk
• Counsellors: Maria-Grazia Lazzaroni, Corrado Campochiaro, Tania Santiago and Michael Hughes

2019-2022:

• Chairman: Oliver Distler
• Secretary: Anna-Maria Hoffmann-Vold
• Treasurer: Armando Gabrielli
• Counsellors: Madelon Vonk, Francesco Del Galdo, Cosimo Bruni, Alexandra Balbir-Gurman

2016-2019:

• Chairman: Yannick Allanore
• Secretary: Otylia Kowal-Bielecka
• Treasurer: Oliver Distler
• Counsellors: Duska Martinovic, Alexandra Balbir-Gurman, Armando Gabrielli, Nicolas Hunzelmann