For database related queries contact:
Terkia Medkour

Welcome to EUSTAR

The European Scleroderma Trials and Research group (EUSTAR) aims to foster the awareness, understanding and research on systemic sclerosis and its management throughout Europe and the rest of the world.

EUSTAR is an international scleroderma research network acting under the umbrella of the World Scleroderma Foundation. The aim is to coordinate and focus research activities, in order to improve treatment, quality of life and prognosis of patients with scleroderma. The EUSTAR group was launched in 2004 and was initially supported by the European League Against Rheumatism (EULAR). The main research tool is a multicenter online database that allows following prospectively more than 15,000 patients with scleroderma in more than 200 International centres. Each patient’s annually scheduled visit for medical purposes is recorded providing longitudinal observational data. Any contributing team can submit a research project and get access to the whole database for the specific approved project.



Affiliation to EUSTAR is open to all centers devoted to the care and study of SSc. Requirement for center affiliation is the capacity to care for SSc patients according to the EUSTAR regulations.



EUSTAR actively encourages and supports the development and conducting of clinical and basic science research. At-a-glance information on all current trials and projects hosted by EUSTAR.



The EUSTAR educational course on systemic sclerosis in place and online course. The EULAR On-line consists of 10 modules which deal with physiopathology, clinical aspects and management of this complex disease.



In Europe, there is a severe lack of clinically-related basic science on the pathogenesis of systemic sclerosis (scleroderma). In addition, many studies are limited by their low patient numbers.



The Journal of Scleroderma and Related Disorders (JSRD) is the official journal of the World Scleroderma foundation. The cover of the journal can be found under the following link:



By attending the EUSTAR teaching course for industry partners. The course targets industry colleagues who are planning to work or are already working in the field of SSc.



Highlights from Congresses

We are delighted to present to you the highlights from the most updated research results in the scleroderma field presented at international congresses: a selection from oral and poster presentation sessions. [...]

Expert Interviews

EULAR 2019 Madrid/span> Read the interviews to Experts from different EUSTAR centers: [...]