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DATABASE
For database related queries contact:
Terkia Medkour
tmedk2000@gmail.com

Welcome to EUSTAR

The European Scleroderma Trials and Research group (EUSTAR) aims to foster the awareness, understanding and research on systemic sclerosis and its management throughout Europe and the rest of the world.

EUSTAR is an international scleroderma research network acting under the umbrella of the World Scleroderma Foundation. The aim is to coordinate and focus research activities, in order to improve treatment, quality of life and prognosis of patients with scleroderma. The EUSTAR group was launched in 2004 and was initially supported by the European League Against Rheumatism (EULAR). The main research tool is a multicenter online database that allows following prospectively more than 15,000 patients with scleroderma in more than 200 International centres. Each patient’s annually scheduled visit for medical purposes is recorded providing longitudinal observational data. Any contributing team can submit a research project and get access to the whole database for the specific approved project.

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CENTERS

Affiliation to EUSTAR is open to all centers devoted to the care and study of SSc. Requirement for center affiliation is the capacity to care for SSc patients according to the EUSTAR regulations.

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PROJECTS

EUSTAR actively encourages and supports the development and conducting of clinical and basic science research. At-a-glance information on all current trials and projects hosted by EUSTAR.

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EDUCATION

The EUSTAR educational course on systemic sclerosis in place and online course. The EULAR On-line consists of 10 modules which deal with physiopathology, clinical aspects and management of this complex disease.

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COMMITTEES

In Europe, there is a severe lack of clinically-related basic science on the pathogenesis of systemic sclerosis (scleroderma). In addition, many studies are limited by their low patient numbers.

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JSRD

The Journal of Scleroderma and Related Disorders (JSRD) is the official journal of the World Scleroderma foundation. The cover of the journal can be found under the following link:

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INDUSTRY WORKSHOP

By attending the EUSTAR teaching course for industry partners. The course targets industry colleagues who are planning to work or are already working in the field of SSc.

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Highlights

Industry Workshop

By attending the EUSTAR teaching course for industry partners, you will be able to: Understand strategies to identify targets for therapy in SSc Weight the natural course of the disease Have an overview on outcome [...]

EUSTAR Business meeting

The EUSTAR Business meeting will be held Friday, June 15th, 2018 from 8.00 to 10.00 am in the room D403 located at the RAI Amsterdam congress center.