EUSTAR Structure and Rules
the 2004 Annual EULAR congress in Berlin, the delegates have voted to
structure the group as follows: chairman, secretary, treasurer, board of
counsellors, general assembly.
Officers are elected by
the general council for a term of 3 years, with option for another 3 years
renewal. All executive decisions should be unanimous among the 3 officers
and approved by the board of councilors. The delegates have elected the
following members of the executive office of EUSTAR for 2013-2016:
Should the chairman be unable to complete his/her term of office, the
executive secretary will succeed to his office;
- The chairman
will chair the meetings and in his/her absence will be represented by
- The chairman presents an annual report during the
EULAR congress and reports once a year to the ESCISIT committee;
The chairman will be responsible to assure the data entry in the data
base and will supervise the exploitation of the data base. The secretary
and the treasurer will assist the chairman in the supervision of the
data base and will present the annual report to the Counsellors and the
general council at the EULAR congress.
The secretary will assist the chairman in all his activities and will
act on his behalf when requested;
- The secretary will record the
minutes of the proceedings of the meetings.
The treasurer supervises all money and other property and assets of
- In any questions of doubt or in cases of large
expenditures (over 10.000 Euros) the treasurer must consult the board of
- The treasurer is responsible to keep accurate books
of accounts of all EUSTAR transactions and these books will be audited
at the end of each year. The Audit Function shall consist of two
auditors to examine the accounts. A written report of their findings
will be submitted to the to EULAR annual congress to the General
- In the event of Treasurer being unable to complete
his/her term of office, the board of counsellors will appoint a
successor to hold office until the next meeting.
- They will second, help and advise the officers in
the management of EUSTAR.
formed by centers affiliated to EUSTAR; evry center affiliated becomes
EUSTAR member when it sends to the secretariat the first MEDS
Every center has the duty to develop the EUSTAR network in his country
and raise awareness about scleroderma from the political to the social
and scientific part;
- General assembly will meet every year
during the EULAR congress;
- Every center may present to EUSTAR a
request concerning the exploitation of the data base for a research: a
project should be submitted to EUSTAR with the specific request and
explanation how the data will be used including authorship;
case of disagreement among components of the board of counsellors, the
issue will be submitted to the general assembly;
- During the
council the yearly meeting will be decided.
- Every three years,
only EUSTAR members have right to vote for the election of the board and
councellors. One representative only from the center member may vote.
For any other issue to be voted and decided by the general assembly,
every center member has right to one vote.
(revised after business meeting, Paris 2008)
- EULAR Scleroderma Tirals and Research group
(EUSTAR) must be acknowledged on every presentation/publication that
results from accepted proposals.
- EUSTAR centers providing
samples and clinical data should be co-authors on manuscripts and
presentations derived from the study (at least one per center) whenever
possible. In case of a too high number of authors for the target
journal, an adequate acknowledgement must be provided in the paper.
Conflicts of interests in this matter will be decided by the Executive
Officers If submitting centers do not agree with this procedure, they
must clearly state this in the proposal. There are no exceptions from
this rule. The sequence of authors is decided by the submitting center,
but should in general be based on the numbers of samples contributed to
- The intellectual content of the proposal belongs to
the submitting center. Misuse of the proposal for own studies is
Rules for Board Election
The caretaker officers positions will be opened to candidature and
there being no alternative nominations, election by closed written ballot
will take place by one representative of every EUSTAR members eligible to
The caretaker officers will be elected by an
overwhelming majority (>50%), supervised by the appropriate EULAR officer
According to the EUSTAR statute, election is for 3 years with an option to
continue for another 3 years. Officers can be re-elected only in a different
The following positions are open to election:
- councellors (4)
The past board will present the
names for nomination.
Any other colleague or group of
colleagues can be nominated for election. This one must be EUSTAR member.
In April, before the elections taking place during the EULAR congress in
June, an announcement will be made asking all EUSTAR members for
nominations. Nominations must arrive at the EUSTAR secretariat before the
end of April. Nominations will be collected and the names will be put
forward for election.
Committee members will be chosen by the
board (after the elections of officers) and proposed to the general assembly
The next new board (chairman, treasurer, secretary)
will be elected after 2 years and will start to work with the previous board
in order to shape up the EUSTAR programme of the next triennium
DNA is property of the patient and of the
Eustar centre that has delivered it. If other experiments than that included
in the Eustar project in its approved version are considered a simple but
formal request should be mailed to the committee in charge of the project
(basic or clinical) to obtain permission and thereafter to the
co-investigators taking care in particular of ethical issues.
The Companies will have no access to raw data, no influence over statistical
analysis and no veto rights on the final publications. Only centres in which
patients have given permission for anonymous data use will participate (this
is an intrinsic part of the MEDS on-line participation)