VEDOSS Project News
TUSCANY FIRST VEDOSS DAYS DEDICATED TO THE Very Early Diagnosis Of Systemic
In early September of 2010 started the
announced days dedicated to the project VEDOSS (Very Early Diagnosis Of
Systemic Sclerosis) presented during the first World Congress on Systemic
Sclerosis held in Florence in February 2010.
The doctors at
this meeting agreed on the importance of very early diagnosis of the disease
that can, in many cases, prevent and slow down, with appropriate treatment,
the course of the disease. The projects will provide, through the
Videocapillaroscopy, a wide-ranging non-invasive screening, to identify
early signs of a possible development of the disease.
Videocapillaroscopy can give immediate results: the signals which show
Raynaud's phenomenon or swollen fingers, will be followed by further
investigations on the presence of antinuclear antibodies.
days were coordinated by the doctors of the Reference Center in Florence
that organized 4 days of free screenings in 4 different towns of Tuscany
(Florence, Montecatini Terme, Pescia and Pistoia). The initiative has been
supported by the University Hospital of Florence and even from different
patient groups and association, like ASSMaF, and found wide acceptance and
enthusiasm. The visits took place on a motor home, equipped as a clinic,
which made stops in the central squares of the places mentioned above.
The volunteers of the patient association have worked together with the
physicians giving a fundamental contribution to the success of the event.
They arranged workstations, equipped with a desk for the first contacts with
the public, distributed informational material about the disease and
supported the work of doctors.
All the days were preceded by press
releases, articles from local newspapers, radio and television interviews
that informed other medical colleagues in order to help them in the
diagnosis of that patients who already presented the typical "cold hands".
The data collected during these Vedoss days "in the streets" were
immediately recorded after the single examination and those people, who
showed suspicious signs related to the disease, were invited to further
detailed laboratory investigations. Many people came and wanted to get
screened and a large number of leaflets about the disease were distributed
to the participants. The creation of a dedicated Vedoss Center at the
University Hospital Careggi in Florence allows the physicians to follow
patients through Videocapillaroscopy screening and other investigations in
the early stages of the disease.